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When
epilepsy is first diagnosed, the stunned parents often see it as
a catastrophe striking the child and the whole family. They ask
the same questions. Is she going to die? Is it due to a brain tumor?
Will he be retarded? Is it our fault? Is epilepsy inherited?
At
this stage, the physician cannot and should not attempt to explain
all the pertinent facts on epilepsy, and most parents are too upset
to remember. They soon recover and are starved for practical, comprehensive,
and accurate information that has been written just for them. It
is the role of health professionals to provide such material. This
issue is so important that some epilepsy programs make parent education
compulsory. This is not surprising, because the better parents and
their children understand epilepsy, the more success the treatment
will be. Clearly, the management of a child with seizures shared
responsibility between the parents and the health care providers.
Medications
alone do not alleviate all the problems of children with epilepsy,
a disorder that may affect so many aspects of their lives. We wrote
this book with these facts in mind, but the book does not replace
the advise of physicians, nurses, social workers, psychologists,
and others. On the contrary, we urge parents to ask more questions
and expect answers.
We
hope that the parents and older child with epilepsy will benefit
from reading this book. Throughout the text, true case histories,
with fictitious names, have been used.
In
the management of children with epilepsy, parents must observe certain
important principles. These basic rules, which are summarized below,
will be mentioned frequently throughout the book.
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